FAMILY NEEDS OF INCURABLE ILL CHILDREN IN THE CONTEXT OF SPECIAL EDUCATION
Abstract
Incurable disease of children is one of the most difficult periods in the life of a family. The family must adapt to the new challenges that bring the illness and everything adapts to the needs of the child. However, we often don´t realize and even don´t know that the family needs must also be fulfilled. The paper presents partial results of the research aimed at identifying the needs of the family with an incurable ill child in a special pedagogical context. For the collection of research data a semi-structured interview with assistants working in the area of child palliative care was conducted. The obtained data were processed by qualitative analysis. The results point to the necessity of a transdisciplinary approach to children with incurable illness and their families – psychologist, social worker, clergymen, and special educator.
Copyright information
- Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License (Creative Commons Attribution License 3.0 - CC BY 3.0) that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
- Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
- Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access).
info@iseic.cz, www.iseic.cz, ojs.journals.cz
